53 year old female, on Rx x 18 months for indolent lymphoma. Developed dysphagia, odynophagia and mid-esophageal ulcers seen on scope

53 year old female, on Rx x 18 months for indolent lymphoma. Developed dysphagia, odynophagia and mid-esophageal ulcers seen on scope

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A myEoEcenter Visitor

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January 31  

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I have EOE which has gotten worse over the years. I would prefer not to be on medication. Has anyone had any luck with just diet changes or anything else rather than medication?

I have EOE which has gotten worse over the years. I would prefer not to be on medication. Has anyone had any luck with just diet changes or anything else rather than medication?

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A myEoEcenter Visitor

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December 26, 2025  

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Heat has been the only option for me. But whe. Its flared up bad it just stays and every now and then itll ease up my body relaxes enough to fall asleep. This does take time to get to that point. I use hot baths and a heating pad. Its the only release i can get. Doesnt always work. But my flare ups last anywhere from 4 to 12 hrs of constant pain, dizziness, and absolutely sick to my stomach where i have to force myself to throw up. Even if there is nothing on my stomach i take in water to… read more

Heat has been the only option for me. But whe. Its flared up bad it just stays and every now and then itll ease up my body relaxes enough to fall asleep. This does take time to get to that point. I use hot baths and a heating pad. Its the only release i can get. Doesnt always work. But my flare ups last anywhere from 4 to 12 hrs of constant pain, dizziness, and absolutely sick to my stomach where i have to force myself to throw up. Even if there is nothing on my stomach i take in water to perform the action. Which this is weird, throwing up helps releave the pain for a short time and i can lay down and hopefully beat the pain before it comes back and go to sleep.

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Justin

What my issue ended up being wasnt the eoe itself, but the high histamines in my system caused a lot of issues with it. If i remember right my i.e.g. or one of those was really high. I was sent to an… read more

What my issue ended up being wasnt the eoe itself, but the high histamines in my system caused a lot of issues with it. If i remember right my i.e.g. or one of those was really high. I was sent to an allergist where he treated me for allergy symptoms. Im practically allergic to all nature and molds and molds in grass being the highest. I was on injections of the things im allergic to in a set of 3 being 3 different things im allergic to and then switch it up after those rounds are over with the bext 3. I stsrted feeling better all around no more gut troubles and i havent had a flare up in over a year and here we are gettin into allergy season and so far just the sniffles. I have very small allergies to foods but it was amplified from my system being inflamed from the high histamine levels. Its something id urge anyone with eoe to look into as a possibility. Your environment may be playing a huge factor on your system.

April 12  

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